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Awards of Excellence

The National Hemophilia Foundation’s Awards of Excellence recognizes individuals whose commitment to serving the bleeding disorders community is an inspiration to us all.

How to Nominate an Award Candidate

Please read the descriptions for the Awards of Excellence to verify that your candidate is eligible and a good fit for the award. To ensure a smooth nomination process, please have the following required information on your candidate ready:
  1. A short bio
  2. Two recommendations
NHF will not consider any applications that do not have these two elements.

Once you have everything ready, click the Nominate Your Candidate  button to make your submission.

Who Can Nominate Candidates

Nominations will be accepted from members of the bleeding disorders community, including NHF chapters, volunteers and HTC staff. Former and current NHF staff are ineligible to submit nominations. 

Who is Eligible for the Awards?

Each award has different eligibility criteria. They are written in the awards’ description. Any individual who meets the requirements is eligible to receive an award. Current NHF board members, NHF staff and paid consultants are not eligible to receive an award.


Deadline for submissions is Friday, May 10, 2019, at 11:59 PM (ET). Any submissions received after the deadline will not be considered.


You will be notified if your candidate has been selected to receive an award by Monday, May 27, 2019. 

Ryan White Youth Award

Ryan White Youth Award, named in honor of Ryan White, is presented to a young person (8-25 yrs old) who has helped educate others both within the bleeding disorders community and among the general population by increasing awareness and understanding. Ryan White [1972-1990] had severe hemophilia and contracted AIDS in 1984 through infusion of contaminated clotting factor. He brought national attention to hemophilia and its complications, changed people's prejudicial attitudes, educated the public and generated national compassion.

Genetic Counselor of the Year

Genetic Counselor of the Year acknowledges an individual who has taken a leading role carried out with excellence, in assisting, guiding, and educating families and individuals on the genetic inheritance of bleeding disorders. For nearly all of our families who learn they are carriers of a congenital coagulation disorder, the genetic counselor is one of the first resources to foster the family's understanding and to help them make informed decisions for the life ahead of them. The Genetic Counselor of the Year is both an expert and empathetic. He or she is current with the latest research in anticipation of an enhanced role in the expanding arena of molecular therapies for coagulation disorders.

Loras Goedken Outstanding Leadership Service Award
Named for: Loras Goedken [1944-1997]

Loras Goedken Outstanding Leadership Service Award, named in honor of Loras Goedken, is presented to an individual who has made outstanding efforts to educate and bring about awareness of inheritable bleeding disorders. Loras Goedken [1944-1997] was a proactive leader. His family's story made national news and brought awareness for the bleeding disorders community. He was a tireless advocate, served in his chapter, and was active on many local boards, government, and support groups.

Advocate of the Year
Named for: Joseph Early [1933-2012] and Dr. L. Michael Kuhn [1929-1974]

Advocate of the Year, named in honor of Joseph Early and Dr. L. Michael Kuhn, recognizes individuals for their outstanding work related to advocacy in the bleeding disorders community. US Rep. Joseph D. Early [1933-2012] was a high-ranking member of the House Appropriations Committee until 1993 and a champion for treatment of people with bleeding disorders. Dr. L. Michael Kuhn [1929-1974] was a dedicated treater of people with bleeding disorders in addition to being a strong advocate for the bleeding disorders community.

Humanitarian of the Year
Named for: Mary M. Gooley

Humanitarian of the Year, named in honor of Mary M. Gooley, honors an individual who has made outstanding contributions in multiple areas on behalf of people affected by bleeding disorders. This person has shown a caring and humane spirit in his/her work to improve the quality of life for patients and their families. Mary Gooley devoted more than 40 years to the bleeding disorders community. She served as the executive director of the Hemophilia Center-Rochester Region, Inc.--now known as the Mary M. Gooley Hemophilia Center--and continued to volunteer after her retirement.

Chapter Volunteer of the Year

The Volunteer of the Year is a new award that recognizes a chapter volunteer who has made a lasting impact on their local chapter through their leadership, volunteer efforts, engagement and advocacy. The recipient has shown dedication to the mission of their chapter over the years, and has served as a valuable resource for their local community.   

Lifetime Achievement Award
Named for: Dick James [1951-1993]

Lifetime Achievement Award, named in honor of Dick James, recognizes an individual who has dedicated his/her life to the bleeding disorders community in order to improve the lives of those affected. This person has contributed his or her time and energy on a national or international scale to advance research, care, and advocacy, and develop new leadership that will lead this organization into the future. Dick James [1951-1993], who had hemophilia and AIDS, was an advocate and leader on behalf of people with bleeding disorders and HIV.
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