NHF's Bleeding Disorders Conference
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Invitation from CEO

Seventy years ago, the parents of a son with hemophilia decided that they wanted better treatments and support for families like their own. Robert Lee Henry and his wife Betty founded what became the National Hemophilia Foundation, and began a tradition of education, advocacy and research for people affected by bleeding disorders in the US.

For our 70th anniversary, we are changing the name of our signature event to NHF’s Bleeding Disorders Conference. The Conference is a place where people affected by bleeding disorders and the community that supports them can come together to learn new information, exchange best practices, and promote the health and well-being of the entire bleeding disorders community.

Our name is new, but our commitment to providing the best education for the entire community remains. We welcome parents of newly diagnosed children and adult men who have seen it all; people with rare bleeding disorders; spouses and partners; women with bleeding disorders; chapter staff and of course, the doctors, nurses, physical therapists and social workers who are so critical to our community’s well-being. Our childcare  programs keep kids engaged in fun activities so you can enjoy the three-day conference without worry, and our Exhibit Hall allows you to view the latest products and services available to the bleeding disorders community.

This year’s lineup includes: 

• A three-hour preconference on von Willebrand disease
• A full track for rare factor deficiencies
• Updates on latest in new treatments and therapies
• A three-day Teen Track
• Proven fundraising and management techniques for chapter staff
• A robust track for women with bleeding disorders 
• Frank discussions of pain management
• A Final Night Event that’s full of fun, family-friendly activities, good food and music that gets you moving

Don’t miss this opportunity to come together at the largest bleeding disorders conference in the US. We guarantee you’ll make some new friends, find answers to questions, receive information you can use and return home feeling more a part of a much larger extended family—the bleeding disorders community. 

NHF’s staff and host chapters are looking forward to seeing you in Orlando!


Val D. Bias
National Hemophilia Foundation

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