NHF TRAVEL GRANTS 

Travel grant applications are now closed.

The National Hemophilia Foundation (NHF) is pleased to offer Connections for Learning, Inhibitor, Inhibidores en Español, and Ultra-Rare Bleeding Disorder Travel Grants for those who want to attend the Bleeding Disorders Conference in Houston, TX from August 25-27, 2022. NHF’s Bleeding Disorders Conference enables communities to come together, network, learn and exchange information on a wide variety of topics including the basics of hemophilia & von Willebrand disease, rare bleeding disorders, research breakthroughs and new drug therapies.

NHF is committed to providing funding to a number of families or individuals who want to attend the conference. With this funding, individuals and families can take advantage of the wealth of information, educational opportunities, support, and get to know others in the bleeding disorders community. 

NHF will honor the 2020 recipients of the Anna de Simone and Connections for Learning Grants. Therefore, the Anna de Simone Grant will not be available for new applicants in 2022 but will return in future years. Connections for Learning has some spaces available and will accept new applications for 2022.

Información para familias de habla hispana:

La conferencia anual en trastornos de coagulación (BDC por sus siglas en ingles) ofrecerá sesiones específicas sobre inhibidores, asi como en otros temas en español.  Para solicitar la beca, complete el formulario de aplicación en español. Para mas detalles, por favor visite este enlace

Who is Eligible?

Connections for Learning Grant

A limited number of Connections for Learning Grants are available to individuals/families with bleeding disorders who wish to attend the Bleeding Disorders Conference. This grant is for individuals/families attending for the first time or to those who have attended in the past. Returning individuals/families are welcome to apply, however, priority is given to those who have not attended in many years. The Connections for Learning Travel Grant is generously supported by Dr. Elizabeth Fung, in loving memory of Dr. Christopher Fung.

Inhibitor Travel Grant 

Is open to people with hemophilia A or B with an active or tolerized inhibitor as well as members of their support network. Currently, we are not able to host those with ultra-rare factor deficiencies or von Willebrand Disease with an inhibitor, as well as those living outside of the US and its territories.  

With that in mind, we encourage participants to think critically about who they register to attend. We request that you only register people that are engaged in the affected person’s day-to-day care/support, and who will commit to attending all educational sessions. 

Who should you register?

If the person in your family with an inhibitor is 17 years of age or younger, you may register: 

  • The affected child (17 years of age or younger with an inhibitor) and, 
  • Up to two of your child’s primary caregivers (including yourself) and, 
  • The affected child’s sibling(s) that live with them:
    • Siblings 18+ may will not qualify for the travel grant unless they are one of the primary caregivers 
    • If any of the siblings have children of their own, they will not be eligible for the travel grant 

Note: NHF will only cover the cost of 1 room with a maximum occupancy of 4 people. You may bring additional family members at your own expense. 

If the person in your family with the inhibitor is 18 years of age or older (legal adult), they may register: 

  • One adult (spouse, significant other, friend, caregiver – does not have to live with them). This person must be involved in the affected person’s day to day care or, 
  • If the affected adult has children that live with them, they may bring their children under the age of 18 years, but only one additional adult support person (spouse, significant other, friend, caregiver) 

Note: NHF will only cover the cost of 1 room with a maximum occupancy of 4 people. You may bring additional family members at your own expense. 

Ultra-Rare Bleeding Disorders Travel Grant

The travel grant for attending the Ultra-Rare Bleeding Disorders track at BDC is open to people with ultra-rare factor deficiencies and platelet disorders as well as members of their support network. Currently, we are not able to host those living outside of the US and its territories.

With that in mind, we encourage participants to think critically about who they register to attend. We request that you only register people that are engaged in the affected person’s day-to-day care/support, and who will commit to attending all educational sessions. 

Who should you register?

If the person in your family with the ultra-rare bleeding disorder is 17 years of age or younger, you may register: 

  • The affected child (17 years of age or younger) and, 
  • Up to two of your child’s primary caregivers (including yourself) and, 
  • The affected child’s sibling(s) that live with them: 
    • Siblings 18+ will not qualify for the travel grant unless they are one of the primary caregiverss
    • If any of the siblings have children of their own, they will not be eligible for the travel grant 

Note: NHF will only cover the cost of 1 room with a maximum occupancy of 4 people. You may bring additional family members at your own expense. 

If the person in your family with the ultra-rare bleeding disorder is 18 years of age or older (legal adult), they may register: 

  • One adult (spouse, significant other, friend, caregiver – does not have to live with them). This person must be involved in the affected person’s day to day care or, 
  • If the affected adult has children that live with them, they may bring their children under the age of 18 years, but only one additional adult support person (spouse, significant other, friend, caregiver) 

Note: NHF will only cover the cost of 1 room with a maximum occupancy of 4 people. You may bring additional family members at your own expense. 

For all grants

  • Applicants must reside in the United States or its territories. 
  • Applicants must be at least 18 years old. 

If you are selected for a travel grant, you are expected to attend all sessions and networking events within the appropriate track at BDC! If you and your family members do not attend the sessions at BDC, you will not be considered for future travel grants.  

Restrictions 

NHF Staff, Board Members and other Chapter Staff as well as those working for industry (i.e. pharmaceutical companies or specialty pharmacies) are not eligible to apply.  

What do the Travel Grants cover?

The travel grants may be used to cover the following types of assistance that you TRULY need: 

  • Airfare or Mileage  
  • Hotel – One room 
  • Kids Program 
  • In-person registration fees 

The application will ask you which of those you truly need in order to attend. By selecting the accurate support, NHF will be able to possibly open the grant up to more applicants, ensuring more of our community can come together to learn and connect. 

Details on covered expenses: 

  • NHF allows up to 4 people per household. 

  • Hotel accommodations are covered for a maximum of four nights and five days.  

  • In-person registration fees to the conference are covered. If you apply for a travel grant and complete a payment for conference registration, you will NOT be given a refund if you are selected for the travel grant. 

Details on expenses NOT covered by NHF:

  • Ground transportation to and from the airport 

  • Parking at your local airport 

  • Parking at the is hotel 
  • Airline baggage fees 
  • Food and beverage, however. there are many opportunities at BDC events for refreshments and meals
  • Additional family members are allowed to attend the conference, at your own expense.

Travel grant applications are now closed. Travel grant recipients will be determined through an equitable selection process conducted by a volunteer review team and will be notified by Tuesday, March 29, 2022. Please do not contact NHF before this date regarding the status of your application.

Questions? Please contact: sroger@hemophilia.org or nscappe@hemophilia.org.